Sunday, December 5, 2010
Things are looking good
Tyler's bone scan showed NO findings. Woohoo! His surgery is on Tuesday to remove the tumor. I thought they were going to do the mIBG scan before the surgery, but they've decided to do it after. What I'm guessing that means is that they have that same peace I do and removing it will be the end of it because there are no more.
Some other things that are looking good is that it seems like my step-daughter Lyric is finally going to be in a school where she has a better chance of succeeding. She got suspended before Thanksgiving for 10 days and David found out this week that they weren't going to let her come back. I wanted her to be able to go to a school I found when we volunteered with my work to help build a playground. A quote in the article I found says "Diamond Community School, Inc. exists for the purpose of providing educational services for all children in grades K-12 with a specialized interest in children who are at risk for school failure due to learning disabilities, academic delays and social- economic challenges. The organization is a non-profit entity committed to providing an educational safety net for children to enable them to become productive, viable and self-sufficient contributors in society." That's what I want for her. Unfortunately, her former school and David weren't able to have the paperwork in place to get her the scholarship she would need to attend that school starting in January. With David still out of work since Sept 2008 and still living at his mother's, he can't pay the tuition and I can't either. An alternative is the Horace Mann Academy, and she starts there on Monday.
Do I think this is the right place for her? Maybe. David took me with him for the tour and it's definitely not as inviting as Diamond, but I like the way they feel about their kids. The goal is to give them the skills to transition back to regular day school. They also don't believe in BAD kids and Lyric is not a bad kid, so that will be a nice change for her to have someone be able to see past the labels others have tried to put on her. We'll see what happens. One big possible wrench in the works is that Lyric's mom for some reason has decided that Lyric needs to be back with her.
One of the many, many problems with her going back with her mom is that she does not make sure that Lyric gets her meds. Lyric is not responsible enough to make sure she gets them herself and that makes for days and days of getting regulated again after messing with her brain chemistry like that. Plus, there are what I dare say after all I've learned on all the wonderful blogs I read about attachment, some attachment issues with her mom. Even though her mom has been, in my opinion, vile to her, I had a text message that Lyric forwarded to me (out of many) that says, "Why can't you be a mother to me? You're supposed to love me even when I do bad." I don't know if her mom saw it (she was threatening to block Lyric from her phone), but she never responded to it. It breaks my heart for her. On top of Lyric's bipolar disorder with ADHD and ODD, she has a real anger issue, which brings us back to why she isn't allowed back in her school. It's a vicious cycle. I don't get to have any say and feel constantly frustrated by not being able to influence decisions very much. David has spent years in years dealing with things the same way and expecting different results. Isn't that considered the definition of insanity? Ugh!
Anyway, this is long enough now. Issues with David can wait for another post.
Have a BLESSED day!
Some other things that are looking good is that it seems like my step-daughter Lyric is finally going to be in a school where she has a better chance of succeeding. She got suspended before Thanksgiving for 10 days and David found out this week that they weren't going to let her come back. I wanted her to be able to go to a school I found when we volunteered with my work to help build a playground. A quote in the article I found says "Diamond Community School, Inc. exists for the purpose of providing educational services for all children in grades K-12 with a specialized interest in children who are at risk for school failure due to learning disabilities, academic delays and social- economic challenges. The organization is a non-profit entity committed to providing an educational safety net for children to enable them to become productive, viable and self-sufficient contributors in society." That's what I want for her. Unfortunately, her former school and David weren't able to have the paperwork in place to get her the scholarship she would need to attend that school starting in January. With David still out of work since Sept 2008 and still living at his mother's, he can't pay the tuition and I can't either. An alternative is the Horace Mann Academy, and she starts there on Monday.
Do I think this is the right place for her? Maybe. David took me with him for the tour and it's definitely not as inviting as Diamond, but I like the way they feel about their kids. The goal is to give them the skills to transition back to regular day school. They also don't believe in BAD kids and Lyric is not a bad kid, so that will be a nice change for her to have someone be able to see past the labels others have tried to put on her. We'll see what happens. One big possible wrench in the works is that Lyric's mom for some reason has decided that Lyric needs to be back with her.
One of the many, many problems with her going back with her mom is that she does not make sure that Lyric gets her meds. Lyric is not responsible enough to make sure she gets them herself and that makes for days and days of getting regulated again after messing with her brain chemistry like that. Plus, there are what I dare say after all I've learned on all the wonderful blogs I read about attachment, some attachment issues with her mom. Even though her mom has been, in my opinion, vile to her, I had a text message that Lyric forwarded to me (out of many) that says, "Why can't you be a mother to me? You're supposed to love me even when I do bad." I don't know if her mom saw it (she was threatening to block Lyric from her phone), but she never responded to it. It breaks my heart for her. On top of Lyric's bipolar disorder with ADHD and ODD, she has a real anger issue, which brings us back to why she isn't allowed back in her school. It's a vicious cycle. I don't get to have any say and feel constantly frustrated by not being able to influence decisions very much. David has spent years in years dealing with things the same way and expecting different results. Isn't that considered the definition of insanity? Ugh!
Anyway, this is long enough now. Issues with David can wait for another post.
Have a BLESSED day!
Wednesday, December 1, 2010
When it rains it pours
So, I've decided that the devil was pretty ticked about that God given peace I've had about all this stuff with Tyler so he tried to shove another wrench in the works yesterday. I was heading to the Christian bookstore and while waiting for a parking space on my left a woman backed into me on the right. A stick in the devil's eye - she had just left the bookstore and while we were talking I found out she is also a Christian and she's going to be praying for Tyler too. God is in CONTROL. All. The. Time!
Tyler is having a bone scan today (pretty soon actually). Please pray there is no findings. It was supposed to start at 7 am, at least the prep part, but Daddy thought that since his boy was going to be having a hard day he deserved to have milk with breakfast. Turns out that was a no-no and they've had to wait until now - 6 hours later. Poor baby. My parents were able to take Tiffany & Tyler over there so she has that support.
I just talked to her. They had to give Tyler a catheter and she had to hold him down. That was really hard for her. In this case, I know how she feels. When she was 2 years old I left her with my first husband while I ran to the store. She decided, for the first time, that day that she was going to run her own bath. Turns out the thermostat was broken on the hot water heater so the temperature wasn't regulated and she burned her foot very badly. Luckily we lived right behind the hospital and got her there quickly, but she had to have hydrotherapy and I had to hold her down while they debrided her burn. I know how heart breaking it is to have to allow someone to terrify & hurt your child to help them. Sucks!
Here is a picture of Tyler on his way home from Arnold Palmer the day after they found the tumor. He doesn't look to unhappy, but I was making faces and saying booga-booga in my silliest voice.
Tyler is having a bone scan today (pretty soon actually). Please pray there is no findings. It was supposed to start at 7 am, at least the prep part, but Daddy thought that since his boy was going to be having a hard day he deserved to have milk with breakfast. Turns out that was a no-no and they've had to wait until now - 6 hours later. Poor baby. My parents were able to take Tiffany & Tyler over there so she has that support.
I just talked to her. They had to give Tyler a catheter and she had to hold him down. That was really hard for her. In this case, I know how she feels. When she was 2 years old I left her with my first husband while I ran to the store. She decided, for the first time, that day that she was going to run her own bath. Turns out the thermostat was broken on the hot water heater so the temperature wasn't regulated and she burned her foot very badly. Luckily we lived right behind the hospital and got her there quickly, but she had to have hydrotherapy and I had to hold her down while they debrided her burn. I know how heart breaking it is to have to allow someone to terrify & hurt your child to help them. Sucks!
Monday, November 29, 2010
Tyler update
David and I went to get them yesterday and our time management skills (lack of is more like it) got us on the road much later than I planned. Then I looked back in David's van and realized that we didn't have a carseat. David had misunderstood that he needed to pick it up from Ron (Kayla's dad). Luckily he was awesome enough to bring it to us.
A friend sent me this email this morning and I thought it would be good to type this once, so here's the scoop:
Additional details: The doctor's initial assessment is that it is a neuroblastoma - excess nerves from his spine - and it's located behind a lung along his spine. He probably has had it since birth. He didn't start walking until later than most kids and he favors his right side. When Tiff and Army took Tyler for his 2 year old check up they ordered for him to have physical therapy. The doctors at Arnold Palmer said that this surgery will probably make all that go away.
This week he will travel back to AP to get a shot and then an mIBG scan (I think twice). The surgery will take 1 -1 1/2 hours from the back (which is good since he sleeps on his tummy).
That's all I have for now. Thank you for all the prayer. I think it gave Tiffany & Army a lot of comfort to feel like they were blanketed in it.
A friend sent me this email this morning and I thought it would be good to type this once, so here's the scoop:
How is the baby today? I haven’t talked to them today, but he was really happy to be home last night after David & I picked them up. He was done with being poked and prodded.
How is Tiff and Army holding up? Tiff is holding up much better than I would have expected. Army is being super supportive and they both feel very confident in the doctors and the plan of action so far. He’ll be having tests this week to make sure there is only the one and tentatively surgery will be next Tuesday.
How are you? I have a lot of peace about Tyler. I was pretty upset that first day for “my” baby because I worry about her so much because her health hasn’t been that great. She’s down to about 87 lbs and feels all her stress in her tummy. But she is really doing good J
What can I do to help you through this? The only thing I know of right now is prayer. Pray that once they remove the tumor that we are DONE. That’s best case scenario and the drs made Tiff and Army feel like that will probably be what happens. They’ll do a biopsy on the tumor and during surgery they’ll do a bone marrow biopsy. Once they have the results of that they’ll know what further action, if any, needs to be taken. Additional details: The doctor's initial assessment is that it is a neuroblastoma - excess nerves from his spine - and it's located behind a lung along his spine. He probably has had it since birth. He didn't start walking until later than most kids and he favors his right side. When Tiff and Army took Tyler for his 2 year old check up they ordered for him to have physical therapy. The doctors at Arnold Palmer said that this surgery will probably make all that go away.
This week he will travel back to AP to get a shot and then an mIBG scan (I think twice). The surgery will take 1 -1 1/2 hours from the back (which is good since he sleeps on his tummy).
That's all I have for now. Thank you for all the prayer. I think it gave Tiffany & Army a lot of comfort to feel like they were blanketed in it.
Sunday, November 28, 2010
It's hard to know what to say
I didn't think I was going to get any sleep last night, but David stayed with me so every time I woke up and remembered I was able to reach for him and fall back asleep. Considering were married that shouldn't be a comment-able situation, but December 12th will be two years since he went to stay at his Mom's to "give me a short break" from dealing with Lyric's bi-polar disorder and ODD and turned into him becoming caregiver for his mom and her boyfriend. It being 2 years is going to have to be a whole other post. I never, ever thought he would be gone this long.
I'm leaving to go see Tiffany, Army and Tyler in a little while. David is going to go with me. Kayla said she didn't think she could deal with me & Tiffany being emotional at the same time. Thing is though, I know I have to hold it together for Tiffany. When she called this morning she sounded so much better and I will NOT be the one who takes that fragile balance from her.
Well, she just called me and the surgeon came to see them. They are going to be removing the tumor next week and they may get to go home tonight. He said it is in the best possible place to remove it. The fever he had is totally gone and I believe that was God's way of getting this thing found. I can't explain it but I have so much peace about this. I've learned a lot about faith, even in the face of extreme adversity, from reading amazing blogs online. Remembering all the posts where people bared their hearts and souls are really giving me strength right now. Thank you Smiles and Trials, Cornish Adoption Journey, Garden of Eagan, Creating My Own Little Nirvana, Storing Up Treasures, My Special K's and many many more. You don't even know me but you've all touched my life in ways I can't even explain.
One more call since I started this. David and I are leaving in a few minutes to go get them. They have to go back Tuesday for another test and surgery is tentatively going to be done Tuesday of the next week.
I'm leaving to go see Tiffany, Army and Tyler in a little while. David is going to go with me. Kayla said she didn't think she could deal with me & Tiffany being emotional at the same time. Thing is though, I know I have to hold it together for Tiffany. When she called this morning she sounded so much better and I will NOT be the one who takes that fragile balance from her.
Well, she just called me and the surgeon came to see them. They are going to be removing the tumor next week and they may get to go home tonight. He said it is in the best possible place to remove it. The fever he had is totally gone and I believe that was God's way of getting this thing found. I can't explain it but I have so much peace about this. I've learned a lot about faith, even in the face of extreme adversity, from reading amazing blogs online. Remembering all the posts where people bared their hearts and souls are really giving me strength right now. Thank you Smiles and Trials, Cornish Adoption Journey, Garden of Eagan, Creating My Own Little Nirvana, Storing Up Treasures, My Special K's and many many more. You don't even know me but you've all touched my life in ways I can't even explain.
One more call since I started this. David and I are leaving in a few minutes to go get them. They have to go back Tuesday for another test and surgery is tentatively going to be done Tuesday of the next week.
Saturday, November 27, 2010
Please pray for Tyler
Today was going to be my family's Thanksgiving dinner celebration, but while we still give thanks for all the blessings in our lives, we are fervently praying for my grandson Tyler. When I started this post he had been at the ER all night with a 104 degree temp. They did an x-ray then a CT scan and saw a mass on his lung. The hospital made the decision to transport him to Arnold Palmer. Now, he's been there for awhile and I talked with my parents a few minutes ago. The doctor mentioned the possibility of neuroblastoma, but they have to run additional tests and then come up with a plan of action once they've gotten all their facts together.
Please pray for my grandson, Tyler and for his mommy and daddy. I've seen the power of prayer and faith over and over again on here. I'm claiming that for them. Thank you.
When Tiffany called me this morning to tell me that Tyler was going to be transported to Arnold Palmer I was very calm. I have a really strong feeling of peace that everything is going to be fine and that God is holding Tyler in HIS hands. I'm definitely freaking out more now - a lot more - but really, I still have that peace. I'm hanging on tooth and nail.
Friday, November 5, 2010
My Friend Rachel
I have become an avid blog read reader. It started with Meredith and now I'm up to 27 in my Google Reader blog roll. Some of these families I've been following for years now. I've met some of them IRL, and some of them I've just commented and others I just follow, but I have to say I have them all in my heart.
One of the families I've met IRL is Rachel's from Finishing Off My Family. I love them. I'll tell you why in another post, but for now, if you know them you know they are struggling with the "system" to keep some children (that are already theirs in their hearts) in their home. There are lots of complicated reasons. GrowingUpLost has a post about it. Here is a link. Rachel asked me to post it.
Rachel, if you read this, I love you. You are one of the most amazing people I know and I'm so glad to have met you and your DH and have you as a part of my life. I know David thinks the same thing. I am here to support you however I can.
One of the families I've met IRL is Rachel's from Finishing Off My Family. I love them. I'll tell you why in another post, but for now, if you know them you know they are struggling with the "system" to keep some children (that are already theirs in their hearts) in their home. There are lots of complicated reasons. GrowingUpLost has a post about it. Here is a link. Rachel asked me to post it.
Rachel, if you read this, I love you. You are one of the most amazing people I know and I'm so glad to have met you and your DH and have you as a part of my life. I know David thinks the same thing. I am here to support you however I can.
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